Well we're home now from 2 weeks at PMH
WE attended Clinic on 12th May and in the afternoon Joel presented ill in the afternoon
Looked like a Panda Bear under the eyes and he started breathing rapidly
Thursday, June 9, 2011
Friday, May 6, 2011
May 2011
Well we all know May is Cystic Fibrosis Awareness Month
In case you hadn't noticed on Facebook!
Joel was off school for last week before Holidays due to a viral thing
Jeslyn was told 2nd last day of school NOT TO COME TO SCHOOL on last day by her Teacher
So both kids were sick the whole Easter Holidays. Joel dropped some weight but has almost put it all back on yewwww
I started a new brainstorm that came to me just before May
31 Days of May the Cystic Fibrosis Way
The idea is that all CF Familys post their own story
I made JPEGS for each day
eg Day 1 1st may DIAGNOSIS
Day 2 The first year the Worst year
Day 3 Medications
I don't know how it will go raising ALOT of awareness but it is proving to be quite therapeutic for the CF Mum's
all over
Devoed BIG W doesn't have any CF Merchandise! They're chock full of PMH Wear a bear Merch
so CF has dipped otu there totally! They would sell 5 - 10 boxes in May just in Bunbury
t
So where am I going to get CF Merch now? Hmmm?
It's a sunny day in Bunbury Craig is putting up a new gate down the side of the house.
and we're about to go get a trailer full of dirt to fill our new Garden beds
JOEL: oh cool can I help
Craig and I: NOOOOOOOOOOO! hahah of course he can do some shovelling!!
In case you hadn't noticed on Facebook!
Joel was off school for last week before Holidays due to a viral thing
Jeslyn was told 2nd last day of school NOT TO COME TO SCHOOL on last day by her Teacher
So both kids were sick the whole Easter Holidays. Joel dropped some weight but has almost put it all back on yewwww
I started a new brainstorm that came to me just before May
31 Days of May the Cystic Fibrosis Way
The idea is that all CF Familys post their own story
I made JPEGS for each day
eg Day 1 1st may DIAGNOSIS
Day 2 The first year the Worst year
Day 3 Medications
I don't know how it will go raising ALOT of awareness but it is proving to be quite therapeutic for the CF Mum's
all over
Devoed BIG W doesn't have any CF Merchandise! They're chock full of PMH Wear a bear Merch
so CF has dipped otu there totally! They would sell 5 - 10 boxes in May just in Bunbury
t
So where am I going to get CF Merch now? Hmmm?
It's a sunny day in Bunbury Craig is putting up a new gate down the side of the house.
and we're about to go get a trailer full of dirt to fill our new Garden beds
JOEL: oh cool can I help
Craig and I: NOOOOOOOOOOO! hahah of course he can do some shovelling!!
Thursday, December 2, 2010
Weight
Joel is 22.6kg today woohoooooooooooooooooooo
His highest was 22.5 a month ago then he got that
Upper Respiratory Tract Infection and dropped kilo
Still, 2 weeks to put it back on is a record in itself
Next update shall be his 23 kilo Party! ;o)
His highest was 22.5 a month ago then he got that
Upper Respiratory Tract Infection and dropped kilo
Still, 2 weeks to put it back on is a record in itself
Next update shall be his 23 kilo Party! ;o)
Wednesday, December 1, 2010
The first day of Summer
Not as hot as yesterday
but still pretty hot
Hope he's alright at school!
Joel wears a bum bag (Fuel Belt at Lunch Time)
with a bottle of Powerade for Hydration
but still pretty hot
Hope he's alright at school!
with a bottle of Powerade for Hydration
Sunday, November 28, 2010
Nov 29th 2010
It's stinking hot here in WA today I've kept Joel home because he was a tad dehydrated on Friday at school Today he's done a few hours homework and has swum in the pool at least 5 times GOt to get his weight back up by 8th December PMH visit grrrr
Thursday, September 30, 2010
September Update on Joel
As of last night Joel has hit 22.5 kilos
His weight is going up slowly but surely
All thanks to 2cal and Benecalorie
I feel another mudcake coming on in the near
week ;o)
This next part is a copy n paste from my Nutrition & Feeding Blog
Yummy Nummies for CF Tummies
Friday 23rd May 2008 was 65 Roses Day
It was also Yearly Poke n Probe day for us
Joel was great at hospital He did a good
Lung Function Test (Mr Wobbly)
was good for all his pre op
but when they wheeled us into theatre
it was like taking a dog to the vet.
He got on the table and laid down ok, but as
soon as he saw the Pink Gas mask he got upset.
I consoled him as much as I could but as I’m
trying to compile as much about the day in the
life of a CFer I couldn’t resist but to take
footage of him being upset Yes I’m a cold
hearted cow, but once he was going to sleep
I held his hand and the eyes welled up as they
do everytime I go with him.
Craig usually goes into the anaesthetic room
and I usually go into recovery, but he’d just
taken Jeslyn to the cafe and we were called in early.
Joel’s lungs were clear from the bad bags ie Pseudomonas,
but he had grown Haemophilus and Aspergillus.
He wasn’t sick when we were admitted to Day Ward and
woke up a little grotty but seemed to snap out of it
quicker than usual. He usually cries for hours in
Recovery but half an hour later he was a happy boy.
I did my best to dodge the Diet Witch but she came up twice.
Drilled Craig the first time and drilled me for 15 mins asking
what he eats how much salt he has how much water etc.
This is hard for normal people to understand but after
talking to a few CF Mum’s today (19th June) it’s unanimous.
We are all sick of being constantly quizzed about our kids.
It’s getting me down lately. I’m also constantly being
quizzed at school. I understand they need to know about
Joel but you get to a point where you’re sick of being drilled.
The Paediatric Neurologist in Perth asks 1000 questions
when I go see him and so does Kelly our lovely speechie.
It feels like you’re constantly being attacked about the way
you look after your child and after talking to CF Mums today,
we all agree it feels like…
when you’re renting a house and every few months you have
a rent inspection. Well it’s like we’re leasing these kids off
PMH and they’re constantly inspecting our ability to feed and
care for our kids. I found it the worst in the first year.
It felt like I needed PMH’s permission everytime I wanted
to spoon something new into Joel’s mouth.
It goes without saying, we all dread going to PMH and all do
our best to avoid Dietitians. (Sorry but you are pushy bitches)
We’re all in agreeance that we’re sick of PMH, and every
text book printing stuff like “CF does not affect development”
“you can expect thae same out of a cfer in class than you
would of a normal child”
then their next paragraph will say Cfers are always tired,
can be suffering upset tummies and flatulence, anxiety,
self esteem etc
which we all agree totally contradicts the previous paragraph.
We know CF is a Respiratory and Digestive Disorder,
but it does affect development, concentration and there is
some speculation regarding the lack of absorption of
vital nutrients in the first few months and years of life
having a cognitive affect on the brain.
What this means is in the first few months (or years?) of life,
children need fat, protein, carbohydrate, sugar, salt etc to
stimulate different parts of the brain. Well Cfer’s can go
undiagnosed for weeks months and years, and even when
they start taking Enzymes it takes a while for the body to
get used to them so that’s got to have some affect on
brain development.
Even if it’s just a little delay. Testing for CF by the Guthrie
Heel Prick Test at birth only camein in WA in August 01.
Joel was born Feb o2, and as he was 10 weeks prem and
was diagnosed at 2 weeks. JH was born in Bunbury and
was diagnosed at 5 weeks. TB was born in Bunbury
in 97? and wasn’t tested for CF back then. TB was sick the
first four years of his life. His Mum J was constantly
taking him to the GP and was told not to worry.
TB wasn’t diagnosed with CF til 4 years of age.
This past year TB was diagnosed with Dyspraxia.
There are three (3) types of Developmental Dyspraxia :
Oral, Verbal and Motor.
A child with Dyspraxia can have one or a combination of
all three types of Dyspraxia and in varying degrees of severity
Dyspraxia is a hidden handicap. Children with this disability
appear the same as any other child. It is only when a skill is
performed that the disability is noticeable\Dyspraxiais believed
to be an immaturity of parts of the motor cortex (area of the brain)
that prevents messages from being properly transmitted to the body
Dyspraxia does not impact on intelligence, children with
Dyspraxia have average or above average intelligence
Dyspraxia can impact on behaviour and social skills
Dyspraxia is a specific learning disability
What is Oral Dyspraxia?
Oral dyspraxia is a difficulty with planning and
executing non-speech sounds, such as blowing, sucking
or individual tongue/lip movements.
This may indirectly affect speech and/or swallowing skills.
A child with Oral Dyspraxia may dribble profusely,
have difficulty licking an ice-cream and may have a preference for either
soft or hard textured foods.
What is Verbal Dyspraxia?
Verbal Dyspraxia is a speech disorder that affects the programming,
sequencing and initiating of movements required to make speech sounds.
Children with Verbal Dyspraxia may:
Display highly unintelligible speech
Simplify words eg. “bur“ for “burger
Have inconsistent speech patterns
Move sounds in a word eg. “tobe“ for “boat“
Exhibit “lost“ or searching movements of the tongue and lips as they endeavour to find the position to make a sound
Have delayed expressive language
Adopt a complex gesture system to aid communication skills
Have difficulty with sequencing words, and sounds in words eg. “Pataka“
What is Motor Dyspraxia?
Motor Dyspraxia is a difficulty
in planning, sequencing and then executing the correct movement
to perform age appropriate skills in a smooth and coordinated
manner at will or on command.
Children with Motor Dyspraxia may have difficulty with:
Learning a new skill
Coordinated movement
Handwriting
Consistent performance
Age appropriate skills
Generalising learnt skills
Timing and rhythm
Learning rules
Responding quickly
Spatial organisation
Problem solving
Using appropriate cues
Analysing what is needed for task performance
Preparing for the next stage in task performance
Joel was diagnosed as
MILD INTELLECTUAL DISABILITY
in May this year
Definition: Many of the characteristics of MID correspond
to those of Learning Disabilities. The intellectual
development will be slow, however, MID students have
the potential to learn within the regular classroom given
appropriate modifications and/or accommodations.
Some MID students will require greater support and/or
withdrawal than others will. MID students, like all
students demonstrate their own strengths and weaknesses.
Depending on the educational jurisdiction, criteria for MID
will often state that the child is functioning approximately
2-4 years behind or 2-3 standard deviations below the norm
or have an IQ under 70-75. The intellectual disability
may vary from mild to profound.
Also Known As: Mild Mental Retardation
I go weeks without even thinking about this latest diagnosis,
but after reading this paragraph I’m upset again. Why Joel?
It’s not fair!
Please don’t take this as a big whinge session but you get so
sick of hearing, he’ll get there. He’ll get it one day.
I’ve been working on simple things like eslyn is a ?
and he’ll say SHE Daddy is a ? HE
but when Joel is frazzled.
eg Jeslyn might kick him and Joel will run inside and say
“He kicked me”
He lets the cat out and says “Ma I’m letting the cat in”
Max is a BOY so he’s a HE Mummy.
Max was laying on my tummy tonight on the couch and
Joel came in and said “oh wow Mummy Maxxy she’s lay on ya tummy
Is he ever gonna get it?
Joel had his yearly bronch in May 2007.
It came back positive for Pseudomonas.
We were admitted to PMH for about 5 days then i
had him transferred to Bunbury Regional to
finish his course of Ab’s.
Joel had a Central line in his neck this year,
which was pretty upsetting for me.
Joel was on Hypertonic Saline Nebs for 2 weeks as well,
which I think helped immensly!
3 months later he had his follow up Bronch, late August.
When he woke up from recovery I knew he was sick and
was worried it was pseudomonas at first.
His cough sounded croupy to me. The nurses assured me
it was from the Bronch, and tracheal brushes which I
informed them he didn’t have, demanded some panadol
and then nurofen an hours later.
The nurses still telling me I’m over reacting.
2 hours later they emerged red faced wth a Dr it turned
out Joel had Para Influenza 3 & Strep Pneumonia.
They demanded we stay in Perth the night, but I told them
if he was that sick he’d be admitted.
After a dose of Dexmethasone Steroid, he was a happy boy!
Sept, days after my birthday I got horrible tonisllitis and
went to my Dr who said it was viral.
That night I was at emergency having Panadeine Forte.
It hurt like hell.
On Tuesday night I couldn’t swallow my own spit so went
to emergency again. I was admitted.
I had horrible reflux and the only thing I could swallow
was ginger beer.
I had an iv put in and laughed when they said they were
giving me Dexmethasone. I said Oh good!
4 hours later, I could swallow!
Magic stuff reduces the inflammation! What a shame
you can’t get it over the counter.
November 2006
Joel is finally Toilet Trained
He was just ready and went himself
(after weeks of grabbing a teddy bear and pulling
Teddy’s jocks down)
and I got….. “Mum stay at” (Mum stay out)
and he shut the door!
Sept 26th Joel Boy is very well and has put back
on all the weight he lost with his influenza.
He was 16.5 in Aug, dropped back to 15.7 and is
ta daaaaaaaaaaaaaaaaaaa 16.5kg again.
Now to fatten this boy up ready for Grade 1 next year.
June 2006
Joel had his yearly ‘Poke n Probe’ on Friday 23rd June
Everything came back good and CT scan was clear Joel
had been suffering constipation and was passing massive
hard stools. He’d been on laxatives and suppositores for
two weeks, but wasn’t softening up.
So I asked for an enema, post op. Boy did that unclog him
and flush him out. Got a photo here hang on, as if! He
didn’t poo Saturday, I thought, oh well, he didn’t eat Friday,
that’s ok, by Sunday arvo he hadn’t pood and was dancing
round crossing his legs and screaming. I rang PMH Resp Dr
on Call. She had mentioned if he bound up again on Friday
to bring him up. So we did.
6 hours in Emergency for a booked admission
FYI They don’t do ADMISSIONS on Saturdays & Sundays at PMH.
Ok, so I know for next time.
NB drive up Monday morning.
Got to his room 1 am. 4 doses of laxatives and an enema
Monday and Tuesday did the trick, softened him right up.
But he still screamed the house down at pootime.
This was now thought to be “stool Anxiety”
We were told Gastroenterology were extremely busy but
were told it is urgent.
I told Craig, it could be 4 days before we see a gastro.
Then blow my hair sideways, a Gastro Dr called in.
He was on the ward.
Long chat, felt Joel’s tummy and sent us packing.
It was decided to ‘up’ his does of laxatives til he virtually
had diarrhea, then cut back on doses. I though my boy
would scream the house down for days or more with
anticipation (stool anxiety) but thank the Lord, he passed
his first one without us even knowing.
He’s back to going once or twice a day.
Drinking 1.2 + litres of water and juice and soy milk per
day, and pretty much back to his old self. Although he
is not telling us he needs to go or has gone.
Perhaps he likes the extra warmth around his botty.
Who knows.
I’ll let him settle back into his routine and then start session #856450 of trying to potty train Joel again.
On the Tuesday of our stay the Bronch results came back
good, not bugs on my boy, and no flies neither! ;o)
His weight is going up slowly but surely
All thanks to 2cal and Benecalorie
I feel another mudcake coming on in the near
week ;o)
This next part is a copy n paste from my Nutrition & Feeding Blog
Yummy Nummies for CF Tummies
Friday 23rd May 2008 was 65 Roses Day
It was also Yearly Poke n Probe day for us
Joel was great at hospital He did a good
Lung Function Test (Mr Wobbly)
was good for all his pre op
but when they wheeled us into theatre
it was like taking a dog to the vet.
He got on the table and laid down ok, but as
soon as he saw the Pink Gas mask he got upset.
I consoled him as much as I could but as I’m
trying to compile as much about the day in the
life of a CFer I couldn’t resist but to take
footage of him being upset Yes I’m a cold
hearted cow, but once he was going to sleep
I held his hand and the eyes welled up as they
do everytime I go with him.
Craig usually goes into the anaesthetic room
and I usually go into recovery, but he’d just
taken Jeslyn to the cafe and we were called in early.
Joel’s lungs were clear from the bad bags ie Pseudomonas,
but he had grown Haemophilus and Aspergillus.
He wasn’t sick when we were admitted to Day Ward and
woke up a little grotty but seemed to snap out of it
quicker than usual. He usually cries for hours in
Recovery but half an hour later he was a happy boy.
I did my best to dodge the Diet Witch but she came up twice.
Drilled Craig the first time and drilled me for 15 mins asking
what he eats how much salt he has how much water etc.
This is hard for normal people to understand but after
talking to a few CF Mum’s today (19th June) it’s unanimous.
We are all sick of being constantly quizzed about our kids.
It’s getting me down lately. I’m also constantly being
quizzed at school. I understand they need to know about
Joel but you get to a point where you’re sick of being drilled.
The Paediatric Neurologist in Perth asks 1000 questions
when I go see him and so does Kelly our lovely speechie.
It feels like you’re constantly being attacked about the way
you look after your child and after talking to CF Mums today,
we all agree it feels like…
when you’re renting a house and every few months you have
a rent inspection. Well it’s like we’re leasing these kids off
PMH and they’re constantly inspecting our ability to feed and
care for our kids. I found it the worst in the first year.
It felt like I needed PMH’s permission everytime I wanted
to spoon something new into Joel’s mouth.
It goes without saying, we all dread going to PMH and all do
our best to avoid Dietitians. (Sorry but you are pushy bitches)
We’re all in agreeance that we’re sick of PMH, and every
text book printing stuff like “CF does not affect development”
“you can expect thae same out of a cfer in class than you
would of a normal child”
then their next paragraph will say Cfers are always tired,
can be suffering upset tummies and flatulence, anxiety,
self esteem etc
which we all agree totally contradicts the previous paragraph.
We know CF is a Respiratory and Digestive Disorder,
but it does affect development, concentration and there is
some speculation regarding the lack of absorption of
vital nutrients in the first few months and years of life
having a cognitive affect on the brain.
What this means is in the first few months (or years?) of life,
children need fat, protein, carbohydrate, sugar, salt etc to
stimulate different parts of the brain. Well Cfer’s can go
undiagnosed for weeks months and years, and even when
they start taking Enzymes it takes a while for the body to
get used to them so that’s got to have some affect on
brain development.
Even if it’s just a little delay. Testing for CF by the Guthrie
Heel Prick Test at birth only camein in WA in August 01.
Joel was born Feb o2, and as he was 10 weeks prem and
was diagnosed at 2 weeks. JH was born in Bunbury and
was diagnosed at 5 weeks. TB was born in Bunbury
in 97? and wasn’t tested for CF back then. TB was sick the
first four years of his life. His Mum J was constantly
taking him to the GP and was told not to worry.
TB wasn’t diagnosed with CF til 4 years of age.
This past year TB was diagnosed with Dyspraxia.
There are three (3) types of Developmental Dyspraxia :
Oral, Verbal and Motor.
A child with Dyspraxia can have one or a combination of
all three types of Dyspraxia and in varying degrees of severity
Dyspraxia is a hidden handicap. Children with this disability
appear the same as any other child. It is only when a skill is
performed that the disability is noticeable\Dyspraxiais believed
to be an immaturity of parts of the motor cortex (area of the brain)
that prevents messages from being properly transmitted to the body
Dyspraxia does not impact on intelligence, children with
Dyspraxia have average or above average intelligence
Dyspraxia can impact on behaviour and social skills
Dyspraxia is a specific learning disability
What is Oral Dyspraxia?
Oral dyspraxia is a difficulty with planning and
executing non-speech sounds, such as blowing, sucking
or individual tongue/lip movements.
This may indirectly affect speech and/or swallowing skills.
A child with Oral Dyspraxia may dribble profusely,
have difficulty licking an ice-cream and may have a preference for either
soft or hard textured foods.
What is Verbal Dyspraxia?
Verbal Dyspraxia is a speech disorder that affects the programming,
sequencing and initiating of movements required to make speech sounds.
Children with Verbal Dyspraxia may:
Display highly unintelligible speech
Simplify words eg. “bur“ for “burger
Have inconsistent speech patterns
Move sounds in a word eg. “tobe“ for “boat“
Exhibit “lost“ or searching movements of the tongue and lips as they endeavour to find the position to make a sound
Have delayed expressive language
Adopt a complex gesture system to aid communication skills
Have difficulty with sequencing words, and sounds in words eg. “Pataka“
What is Motor Dyspraxia?
Motor Dyspraxia is a difficulty
in planning, sequencing and then executing the correct movement
to perform age appropriate skills in a smooth and coordinated
manner at will or on command.
Children with Motor Dyspraxia may have difficulty with:
Learning a new skill
Coordinated movement
Handwriting
Consistent performance
Age appropriate skills
Generalising learnt skills
Timing and rhythm
Learning rules
Responding quickly
Spatial organisation
Problem solving
Using appropriate cues
Analysing what is needed for task performance
Preparing for the next stage in task performance
Joel was diagnosed as
MILD INTELLECTUAL DISABILITY
in May this year
Definition: Many of the characteristics of MID correspond
to those of Learning Disabilities. The intellectual
development will be slow, however, MID students have
the potential to learn within the regular classroom given
appropriate modifications and/or accommodations.
Some MID students will require greater support and/or
withdrawal than others will. MID students, like all
students demonstrate their own strengths and weaknesses.
Depending on the educational jurisdiction, criteria for MID
will often state that the child is functioning approximately
2-4 years behind or 2-3 standard deviations below the norm
or have an IQ under 70-75. The intellectual disability
may vary from mild to profound.
Also Known As: Mild Mental Retardation
I go weeks without even thinking about this latest diagnosis,
but after reading this paragraph I’m upset again. Why Joel?
It’s not fair!
Please don’t take this as a big whinge session but you get so
sick of hearing, he’ll get there. He’ll get it one day.
I’ve been working on simple things like eslyn is a ?
and he’ll say SHE Daddy is a ? HE
but when Joel is frazzled.
eg Jeslyn might kick him and Joel will run inside and say
“He kicked me”
He lets the cat out and says “Ma I’m letting the cat in”
Max is a BOY so he’s a HE Mummy.
Max was laying on my tummy tonight on the couch and
Joel came in and said “oh wow Mummy Maxxy she’s lay on ya tummy
Is he ever gonna get it?
Joel had his yearly bronch in May 2007.
It came back positive for Pseudomonas.
We were admitted to PMH for about 5 days then i
had him transferred to Bunbury Regional to
finish his course of Ab’s.
Joel had a Central line in his neck this year,
which was pretty upsetting for me.
Joel was on Hypertonic Saline Nebs for 2 weeks as well,
which I think helped immensly!
3 months later he had his follow up Bronch, late August.
When he woke up from recovery I knew he was sick and
was worried it was pseudomonas at first.
His cough sounded croupy to me. The nurses assured me
it was from the Bronch, and tracheal brushes which I
informed them he didn’t have, demanded some panadol
and then nurofen an hours later.
The nurses still telling me I’m over reacting.
2 hours later they emerged red faced wth a Dr it turned
out Joel had Para Influenza 3 & Strep Pneumonia.
They demanded we stay in Perth the night, but I told them
if he was that sick he’d be admitted.
After a dose of Dexmethasone Steroid, he was a happy boy!
Sept, days after my birthday I got horrible tonisllitis and
went to my Dr who said it was viral.
That night I was at emergency having Panadeine Forte.
It hurt like hell.
On Tuesday night I couldn’t swallow my own spit so went
to emergency again. I was admitted.
I had horrible reflux and the only thing I could swallow
was ginger beer.
I had an iv put in and laughed when they said they were
giving me Dexmethasone. I said Oh good!
4 hours later, I could swallow!
Magic stuff reduces the inflammation! What a shame
you can’t get it over the counter.
November 2006
Joel is finally Toilet Trained
He was just ready and went himself
(after weeks of grabbing a teddy bear and pulling
Teddy’s jocks down)
and I got….. “Mum stay at” (Mum stay out)
and he shut the door!
Sept 26th Joel Boy is very well and has put back
on all the weight he lost with his influenza.
He was 16.5 in Aug, dropped back to 15.7 and is
ta daaaaaaaaaaaaaaaaaaa 16.5kg again.
Now to fatten this boy up ready for Grade 1 next year.
June 2006
Joel had his yearly ‘Poke n Probe’ on Friday 23rd June
Everything came back good and CT scan was clear Joel
had been suffering constipation and was passing massive
hard stools. He’d been on laxatives and suppositores for
two weeks, but wasn’t softening up.
So I asked for an enema, post op. Boy did that unclog him
and flush him out. Got a photo here hang on, as if! He
didn’t poo Saturday, I thought, oh well, he didn’t eat Friday,
that’s ok, by Sunday arvo he hadn’t pood and was dancing
round crossing his legs and screaming. I rang PMH Resp Dr
on Call. She had mentioned if he bound up again on Friday
to bring him up. So we did.
6 hours in Emergency for a booked admission
FYI They don’t do ADMISSIONS on Saturdays & Sundays at PMH.
Ok, so I know for next time.
NB drive up Monday morning.
Got to his room 1 am. 4 doses of laxatives and an enema
Monday and Tuesday did the trick, softened him right up.
But he still screamed the house down at pootime.
This was now thought to be “stool Anxiety”
We were told Gastroenterology were extremely busy but
were told it is urgent.
I told Craig, it could be 4 days before we see a gastro.
Then blow my hair sideways, a Gastro Dr called in.
He was on the ward.
Long chat, felt Joel’s tummy and sent us packing.
It was decided to ‘up’ his does of laxatives til he virtually
had diarrhea, then cut back on doses. I though my boy
would scream the house down for days or more with
anticipation (stool anxiety) but thank the Lord, he passed
his first one without us even knowing.
He’s back to going once or twice a day.
Drinking 1.2 + litres of water and juice and soy milk per
day, and pretty much back to his old self. Although he
is not telling us he needs to go or has gone.
Perhaps he likes the extra warmth around his botty.
Who knows.
I’ll let him settle back into his routine and then start session #856450 of trying to potty train Joel again.
On the Tuesday of our stay the Bronch results came back
good, not bugs on my boy, and no flies neither! ;o)
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